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Worth Reading

Routine autism screenings bad for kids: Study 

By Sheena Goodyear, QMI Agency – Tuesday, June 14, 2011

Routinely screening children for autism could do more harm than good, according to a new Canadian study that flies in the face of recommendations from south of the border.

Autism is a group of neurodevelopmental disorders that seriously impact communication skills, social interaction and cognitive abilities. The Autism Society of Canada estimates one in every 200 Canadian children has some form of autism, ranging from minor to severe. While kids start displaying symptoms of autism as young as three, most aren’t diagnosed until they’re five, leading many researchers in recent years to push for earlier and more regular screenings.But the latest research from McMaster University in Hamilton, Ont., rejects this idea.

In a study published in the journal Pediatrics, researchers who reviewed current literature on autism screenings said there is “not enough sound evidence to support the implementation of a routine population-based screening program for autism.” They make this claim despite a 2007 recommendation from the American Academy of Pediatrics that all children be screened for autism at 18 and 24 months, and growing support for routine screenings from experts in the field.

But that kind of mass screening could easily lead to kids getting misdiagnosed, Dr. Jan Willem Gorter, the McMaster study’s lead author, told QMI Agency. That’s because the symptoms associated with autism can often turn out to be caused by something entirely different, he said. A child who doesn’t respond to his or her name could have hearing problems, for example. A child who has trouble socializing at age three might be the most popular kid on the block by the time they turn four.

Misdiagnosing autism would not only force kids to carry around the stigma of a disorder they don’t have but would also put an unnecessary burden on the health-care system, Gorter said. “There are limited resources for children to get the help they need. There are wait lists of one year or longer,” he said.

Other studies, however, have touted the benefits of early, wide-spread screening. A study earlier this month from the Children’s Hospital of Philadelphia, also published in Pediatrics, said systematic screening of kids between 14 and 24 months leads to early diagnoses and better care. The study used a simple questionnaire to spot early signs of autism, such as problems with communication and social interaction, to identify those most at risk.

A similar study in April from the National Institute of Mental Health in the U.S. showed that by administering questionnaires to toddlers’ parents and doctors, researchers could to accurately predict autism 75% of the time.

“This program is one that could be adopted by any pediatric office, at virtually no cost, and can aid in the identification of children with true developmental delays,” said that study’s lead author, Dr. Karen Pierce.

But the McMaster study warned this type of research is in the very early stages, and implementing routine screenings for autism turns kids into guinea pigs. “None of the autism screening tests currently available has been shown to be able to fulfill the properties of accuracy — namely, high sensitivity, high specificity and high predictive value (proportion of patients with positive test results who are diagnosed correctly) in a population-wide screening program,” the study said.

Nevertheless, Gorter said any child whose parents, teachers or doctors express concern should be screened.

“But that’s very different than going to the public and testing young children, all children, regardless if the parents have concerns,” he said. “Of course, parents’ concerns should always be taken seriously.”

Bill to stop picketing at peoples’ homes passes second reading

TORONTO — The bill to stop picketing in front of the homes of people who have a disability passed its second reading Oct. 28, before a public gallery of Bill 83 proponents from around the province.

More than 80 people from 20 different communities in Ontario made their way to Queen’s Park to watch the debate.

Introduced into the legislature in May by Sylvia Jones, Progressive Conservative Critic for Community and Social Services and MPP for Dufferin-Caledon, The Protecting Vulnerable People Against Picketing Act is intended to stop striking workers from using peoples’ homes as a place to picket during a labour disruption. People First of Ontario is pleased with the progress of Bill 83.

“It’s a great step forward,” Kory Earle, president of People First, told Community Living Leaders.

Earle explained earlier that People First supports a person’s right to strike but takes issue when it occurs in neighbourhoods and on peoples’ front lawns.

“What we don’t believe in is the ethics of picketing at people’s homes. We should not be caught in the crossfire of a labour dispute. It’s just plain wrong.”

Community Living Ontario is also “very encouraged” by the passing of the second reading of Bill 83.

“The proposed legislation could make the difference between people who have an intellectual disability living a peaceful life in typical neighbourhoods or living a life of fear and shame,” said Kimberley Gavan, director of community development for Community Living Ontario.

Back in 2007, about 2,000 were impacted when staff from seven agencies in the province went on strike and picketed at homes where people live. In 2009, staff at another agency wound up on peoples’ front lawns again. Workers have caused disruptions by using whistles and blow horns and setting up portable toilets.

During yesterday’s debate about the bill, some politicians raised concerns that while these were peoples’ residences, they were also employees’ workplaces. Other members discussed workers’ rights to strike, raised concerns about replacement workers and potential issues with labour codes.

Jones requested support for the bill and said she was open to recommendations for amendments. Bill 83 has now been referred to the Standing Committee on the Legislative Assembly for public comment.

“I am pleased that my colleagues in the Ontario Legislature recognize the importance of protecting individuals living in supported living residences from the harm of picketing,” Jones said.

“Now the next step is to quickly get this bill to committee for public comment. No more time can be wasted when it comes to protecting vulnerable individuals in this province.” 

The Respect Our Homes Coalition and Community Living Ontario held a press conference about the issue earlier Thursday in the media studio at Queen’s Park.

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